It’s Apparently Disability Awareness Month, And I Really Don’t Care

I’ve been aware of disability all my life. Not only do I live with my own disability and the disability of my husband, but I spent my entire childhood attending school, Saturday recreation programs and summer camps with children who had a variety of physical and intellectual disabilities. In my early 40s, I spent two years in a nursing home for disabled adults. So I’m quite aware of disability, thank you very much.

I guess I could devote this month’s worth of blog posts to writing disability themed articles. Such articles usually attract lots of readers, and my ego would certainly love that boost in numbers. Maybe able bodied people would actually learn a few things.

But I’ve always felt a little uncomfortable about disabled people who form their careers or ministries around disability. God uses them, I admit. Often. they open doors for other disabled people, greatly improving their lives. Yet it bothers me a little to see them focus so narrowly on their disabilities that few of them seem to have an identity that transcends disability. I don’t mean to be judgmental, but I’d rather raise myself above my disability in order to take my place in the able bodied world. Not that I want to pretend that my Cerebral Palsy doesn’t exist — I just don’t want it to define me.

My identity is in Christ.

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I May Never See Boston Again

Growing old, as my mother once said, isn’t for the faint of heart. And as I approach my 70th birthday, I can’t decide whether I’m too old to be crippled or too crippled to be old. 🙂 Either way, the combination doesn’t appeal to me.

At the end of 2020, I fractured my back for the third time. The other two times, I’d recovered fairly quickly, and even enjoyed day trips into Boston until September of 2019. In 2020, an acute bout with anemia and malnutrition left me unable (and frankly, uninterested) in going to Boston, but I looked forward to taking my new, easier to drive power wheelchair into the city. I imagined jetting up the Rose Kennedy Greenway or tooling down Boyleston Street without the struggle that my previous chair caused. Sadly however, trouble with Personal Care Attendants just as my back fracture was healing kept me in bed much longer than I would have otherwise stayed down. As a result, my back muscles have become weak, and driving is sometimes painful.

At this point, I don’t see myself even returning to church (although John and I remain members in good standing and stay accountable through an elder who comes each Friday to lead us in Bible Study). Those cherished excursions to Boston are therefore entirely out of the question! After all, fellowship is infinitely more important than sitting on Boston Common watching tourists or going to the North End for cannolis. Slowly, I’ve accepted that I may never see Boston again.

And it’s all right.

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A Wheelstroke Closer

In honor of Valentine’s Day, I’ve decided to reprise the following article about my early courtship with John, first published April 4, 2016. An earlier article told how John and I met online, an important detail in understanding this article.

First visit with John


Since neither of us can walk, John wanted to take our relationship “one wheelstroke at a time.” Easy for him to say, since he had been living in the Greater Boston Area pretty much all his life. He knew, of course, that I’d moved back to San  Rafael, California just a few short months before we first chatted online, but he had no idea that my interest in a future with him required me to put off major life decisions until  either he proposed or we broke up.

John’s Polio had affected his breathing, making plane travel unwise (and probably dangerous) for him. Consequently, I would have to make all the visits, as well as be the one to move if we married. For that reason, the course of our relationship would affect my future more dramatically than it would affect his. This being the case, I felt an urgency about our future that wanted a faster progression of “wheelstrokes” than John seemed willing to make. In addition to my own eagerness (after all, I was in my mid-40s), I felt pressure from other people to make decisions about my life.

Most notably,  a family member had legitimate concerns about my mom’s ability to care for me in her advancing age. She threatened to find a nursing home for me if I didn’t make an effort to procure a new living situation. Thankfully, I convinced her to wait until we knew what would happen with John. That decision, along with other major decisions, had to stay on hold.

I did, however, begin teaching the Junior High Sunday School class at Church of the Open Door, knowing that it could be a temporary ministry while I waited. I thought it might teach me to control my temper (it didn’t), and the church really  needed teachers for that age group. Other than teaching that class once every three Sundays,  I tried to minimize my attachment to San  Rafael…just in case the Lord brought me and John together.

But John made a significant “wheelstroke” on March 31, 1999 by telling me that he loved me. Not long afterwards, we began making plans for my first visit.

Knowing that we believed we loved each other didn’t assure me that we’d feel the same when we   met face-to-face. Nor did it mean that the Lord wanted us to marry. To further complicate matters (at least from my perspective), a former girlfriend of John’s contacted him as she was dying of cancer. Remembering how my feelings for Bob intensified after he died, I feared that this lady’s death would have a similar effect on John. So I tried to approach my upcoming visit with the attitude that God might use it to show us that He wanted us to just be friends.

Often, when I struggled with confusion and frustration over John, I’d drive my power wheelchair around Terra Linda and pour out my feelings to the Lord. I remember one afternoon when I sat in a secluded little park (a favorite of mine, even though I seldom got to go there) and prayed. I comforted myself with the thought that, even if things with John didn’t work out, the Lord would have blessed me with the opportunity to see Boston.

When John greeted me at Logan Airport that October evening by kissing my hand, I knew it wouldn’t be our last visit. He, on the other hand,  had such difficulty feeding me (selfishly, I’d asked him to do it from my left) that he went home from  my hotel sorrowful that he saw no way of making a marriage with me work.

For my first full day that visit, John planned a trip to the Museum of Fine Arts followed by a lobster dinner in the Oak Room at the Copley Fairmont Hotel. He’d known that I spent the night of my Senior Prom studying Macbeth, so he wanted to make it up to me. Therefore he figured that, rather than spoil my “prom night.” he’d wait until the next day to break the news.

He hadn’t counted on our first in-person date confirming that he was in love.

The next day, before we had lunch with his mom and his pastor,  we kissed for the first time. Later that evening we had dinner at Wolleston Beach with our Personal Care Attendants, and at his church on Sunday I joined him in doing the Children’s Sermon.

Breaking up was the last thing on our minds when John and I said goodbye at Logan Airport that Monday. We’d taken a big “wheelstroke” in our relationship, trusting that the Lord Jesus Christ had plans for us. As yet, I wasn’t certain He had marriage in His will for us, but I sure had hope!

My Dirty Little Heart And Grace

Originally published November 27, 2015, but slightly revised for clarity.

Young Lady 01

Today, January 20, 2023, marks 52 years since the Lord graciously saved me. Let me share my testimony — not as the Gospel, but as a small demonstration of His wonderful grace.


He had thick golden hair that sunlight would dance in. 52 years later, I can’t recall anything else about him, but at the time the slightest bit of attention from him produced exciting (and frightening) sensations that my 17-year-old body had never experienced. Thankfully, the severity of my disability held me back from making myself sexually available to him in the weeks before his deployment to Vietnam.

I fantasized that he’d get me pregnant so that he’d have to marry me when he returned from the war. As you might guess, however, he made no advances toward me. But 17-year-olds rarely live in reality, and so I clung to hope that I could have the sexual encounter when he came back to San Rafael, California (where I lived at the time). Once he wrote that first letter, providing me with his address, I could surely write letters that would make me irresistible! Couldn’t I?

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The Wheelchair Square Dance And Listening To God’s Word

The church I attended in California often had square dances — mostly to give singles something to do on Valentine’s Day. Singles, married couples and children all joined the fun, and I enjoyed watching and chatting with other spectators. Over the years, I learned that square dancing isn’t really that difficult if dancers simply listen to the caller. Callers always explain the calls before each set so that everyone understands how to respond to each call. Thus, even though I didn’t dance myself, I knew that the trick to square dancing comes from paying attention to the caller.

About that time (I’m guessing over 30 years ago) a friend of mine from another church had started a ministry to disabled children using equestrian therapy (she was herself a wheelchair user who had benefited from horseback riding). She always invited me to her fundraising events. When she called to invite me to a wheelchair square dance, I couldn’t resist!

Like every other square dance I’d attended, this one began with the caller carefully teaching us how to respond to each call. Because we all used wheelchairs, he also taught us how to adapt the calls to dancing in chairs. It really wasn’t rocket science, even with the added condition of wheelchairs, and everyone caught on pretty quickly.

Everyone except the partner they gave me.

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The Tragic Demise Of Poindexter And The Consequent Arrival Of Providence

For many months, John had been suggesting that I consider getting a new computer, gently reminding me that mechanical things eventually do wear out. But surely, I kept telling myself, Poindexter didn’t really need to retire!

Poindexter had been my computer for almost ten years, and (although he had begun to get a little cranky in his old age) had never given me any serious trouble. I superficially agreed with John that I should probably upgrade , but I hated the idea of setting up a new computer when Poindexter had everything just as I liked. Additionally, I’d watched a couple YouTube videos on Windows 11 that made the new operating system seem decidedly undesirable. So I ignored John’s pleas and convinced myself that Poindexter would defy aging for a few more years.

Sunday evening, November 20, John tried to turn on Poindexter. My beloved computer had died of a corrupted hard drive.

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A Landmark Anniversary And Thoughts About Marriage For People With Disabilities

Okay, so for most of you, August 24, 2002 was just an average summer Saturday. You probably can’t remember what you did that day, nor do you really care. I understand. Saturdays come and go usually without much fanfare, and 2002 was, after all, 20 years ago.

But on that Saturday, my life changed dramatically. I entered the church as a single woman, and left it as Mrs. John A. Kespert. Your average summer Saturday turned almost everything in my life upside down and inside out as I started living with a man for the first time since my father died 39 years earlier. These past 20 years have taken me in directions I couldn’t have imagined, sometimes exposing my sin and sometimes showing me the grace of the Lord in the midst of trials. I’ve seen John’s feet of clay, and I’ve seen his Christlike character.

Landmark occasions all but demand some sort of retrospective commentary. But how does a blogger sift through 20 years of memories to come up with a post that will minister to her readers?

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Shut-Ins Mustn’t Be Shut Out

For just as we have many members in one body and all the members do not have the same function, so we, who are many, are one body in Christ, and individually members one of another. ~~Romans 12:4-5 (NASB95)

Before I say anything else, let me be perfectly clear. If you are able to get in a car and go anywhere, you have no excuse for missing church. Attending a local church and actively serving as a member of that church is absolutely essential, and I’m by no means writing this article to suggest that you should stay home on Sunday mornings and “do” church by watching a live streamed service. For most Christians, physically being with the Body is a no-brainer.

That said, John and I have been unable to attend our wonderful church for almost three years because of various circumstances — most notably my back problems. I’m improving, and we hope the Sunday will come when we once again enter that building to worship the Lord with our cherished church family.

For now however, the Lord has graciously provided live streams of the Sunday morning service and the Wednesday night Bible Study. Additionally, one of the elders comes to our apartment on Friday mornings to teach Bible Study and occasionally give us the Lord’s Supper. The church administrator emails us the Sunday bulletin and the weekly Prayer Guide. In return, we stay faithful in our giving, praying daily for the church. As far as I can, I use this blog to represent our church, asking the elders to oversee it. Despite being shut-ins, therefore, John and I feel connected to our church.

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An Unexpected Perk Of Disability

When the phone rang before 6:30 a.m. Monday, I knew my PCA was calling out. She had a serious family emergency that required her presence. I’d been without a regular PCA all weekend, and spent Sunday in bed to accommodate my girlfriend’s Mother’s Day schedule (I deeply appreciate her for filling in on Mother’s Day to keep me clean), so I felt a little disappointed Monday. It took until 10:30 to locate a backup PCA.

Usually, situations like this make me grumble. Since I can’t use my hands, being in bed means I can’t type or read. John has to call around for backup help because I can’t operate a phone. I just lie in bed, aware that I’m physically as helpless as a newborn baby.

Times when PCAs call out or just plain don’t show up remind me of my total dependence on other women. Instead of congratulating myself on my writing and artistic abilities, my days stuck in bed confront me with the actual extent of my disability.

Those confrontations are an answer to prayer.

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Exceptions Don’t Invalidate General Rules

Someone on social media kind of complained a few days ago that people too quickly point out their mitigating circumstances whenever they see posts laying down Scriptural principles. I am one of the people she meant, though I doubt she had me in mind when she wrote the post. As I’ve mulled over her remark, I’ve had to agree that people these days are far too sensitive, especially when circumstances beyond their control force them to be exceptions to the rule.

One topic in particular seems to compel me to voice my status as someone with exceptional circumstances. Whenever I hear admonishments against staying home from church, I immediately experience defensive feelings, certain that others judge me as a hypocrite who has no business writing a Christian blog. And if I stayed home from church simply out of personal preference as a matter of convenience, they’d be absolutely right!

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