An Unexpected Perk Of Disability

When the phone rang before 6:30 a.m. Monday, I knew my PCA was calling out. She had a serious family emergency that required her presence. I’d been without a regular PCA all weekend, and spent Sunday in bed to accommodate my girlfriend’s Mother’s Day schedule (I deeply appreciate her for filling in on Mother’s Day to keep me clean), so I felt a little disappointed Monday. It took until 10:30 to locate a backup PCA.

Usually, situations like this make me grumble. Since I can’t use my hands, being in bed means I can’t type or read. John has to call around for backup help because I can’t operate a phone. I just lie in bed, aware that I’m physically as helpless as a newborn baby.

Times when PCAs call out or just plain don’t show up remind me of my total dependence on other women. Instead of congratulating myself on my writing and artistic abilities, my days stuck in bed confront me with the actual extent of my disability.

Those confrontations are an answer to prayer.

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